…
We’re travelling through different countries
I am constantly holding your hand
every day is a new sight to behold
but I am frightened in this land
…
Other people travel with us
as it’s harder to walk alone
I do not know where to go from here
Sometimes the path is too damn cold
…
I will stay with you forever, forever and a day
but there’s one thing that I need to know
is this your resting place forever, forever and a day
or do you want to touch the snow?
…
I can feel your pace quicken
your hand is stronger in my grasp
I hope to see you soar upward someday
and take me far beyond our past.
…
I will stay with you forever, forever and a day
but there’s one thing that I need to know
is this your resting place forever, forever and a day
or do you want to touch the snow? (the snowflakes on your face)
do you want to feel the water (the water on your toes)
or do you want to feel the sun (the sun on your soul)
or do you want to touch the snow? (the snowflakes on your face)
or do you want to feel the sun (the sun on your soul)
…
Hear me,
are you still breathing?
Feel me,
is your heart still beating?
See me,
running, jumping, stealing time
while you fall slowly behind.
…
I will be with you forever
I will walk with you forever
I will stay with you forever
Fleur Missaghian (recording by Fleur Missaghian and Richard Leigh) – For Ramin, of course.
Some other lyrics, that didn’t make the grade as I didn’t know if I could sing them without weeping (!) were:
Sometimes I wake to the morning’s bright light
in hope you’ll be as you were before
I won’t have to deal with the stranger in my loved one
won’t have to be strong anymore
… and …
Other people travel with us
taking care of both you and I
every prayer and thought of love is needed
so that I don’t fall to my knees and cry.
So this song was written when I needed to express my frustration with theseeming lack of forward motion with my hubby’s progress. Having a partner with MS does mean that both you and him/her need to exercise mucho patience and mucho communication (in short bursts – otherwise he feels like his head is melting) to make sure you are both on the same page. But sometimes just saying; ‘This is too slow!’ or ’IS this what our life will be like forever?!’ and ’I feel I can’t cope with this and I need to explain why!’ through poetry or (for me in particular) a song, is a good way of dealing with emotions and head weirdness, rather than breaking down emotionally or – even worse – deciding to separate from your loved one. Neither of us asked for MS to enter our lives, he can’t help sufferring from symptoms and I can’t help finding it all really hard, but we can work together to deal with the problems, taking each day one-day-at-a-time and remembering we love each other, even when it’s really hard.
So this song is expressing these feelings and I am glad to report life has moved on since then. Ramin hearing me sing this song moved him very much (although he never really got why I wanted him to feel the water on his toes…) and also let him see – in his heart and mind – that he must keep moving forward and not give in to the ease of seeing himself as someone who other people always need to look after. He is a survivor of this terrible debilitating condition, and I am so grateful for this experience as it has taught us both that love exists beyond the physical, beyond the hear and now – and is an eternal connection that will last forever, if you keep working together and just let love be.
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